This video focuses on someone who has been diagnosed with SPG4 so it won't be applicable to everyone, considering that, so far, over 90 genes have been identified with HSP. He also mistakenly says that HSP is a rare disease that affects the lower motor neurons. However, it affects the upper motor neurons.

Here is a link to clinical trials that have been completed or are recruiting: 


Understanding HSP disease in briefmore info
Promising treatment found for SPG5 HSPmore info
SPG7 more common in Australiamore info
Next generation gene testing telling a story more info
Hereditary spastic paraplegia from 1880 to 2017: an historical reviewmore info
Chronic Painmore info
Final QA with Craig Blackstone NIH on drug trialsmore info
Management of HSPmore info
Recherce HSP publications articlesmore info
Clinical trials designsmore info
Next generation molekylar diagnoses Italymore info
Perspective on geomics on HSP

more info

Tom Wahlig Foundation

Euro-HSP works in close cooperation with the Tom Wahlig Foundation - a German charity providing world wide support for HSP research.