Research
This excellent video focuses on someone who has been diagnosed with SPG4 so it won't be applicable to everyone, considering that, so far, over 90 genes have been identified with HSP. He also mistakenly says that HSP is a rare disease that affects the lower motor neurons. However, it affects the upper motor neurons.
Here is a link to clinical trials that have been completed or are recruiting:
Understanding HSP disease in brief | more info |
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Promising treatment found for SPG5 HSP | more info |
SPG7 more common in Australia | more info |
Next generation gene testing telling a story | more info |
Hereditary spastic paraplegia from 1880 to 2017: an historical review | more info |
Chronic Pain | more info |
Final QA with Craig Blackstone NIH on drug trials | more info |
Management of HSP | more info |
Recherce HSP publications articles | more info |
Clinical trials designs | more info |
Next generation molekylar diagnoses Italy | more info |
Perspective on geomics on HSP |