Welcome to
EURO-HSP

EURO-HSP is a Federation of national  associations related with a Rare Disease called Hereditary Spastic Paraplegia or Strümpell-Lorrain disease. The federation was made up during the project Rare! Together from EURORDIS. 

NEWS from EURO-HSP

euroSPG4 Project - Summer Update 2024

The euroSPG4 consortium successfully completed the first project year and started the second. Time for providing an update …

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Euro-HSP Welcomes Germany

We proudly continue in puzzling a strong HSP-patient together

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Adolf Struempell Prize Winner 2024: Lotte van de Venis

Euro-HSP is pleased to announce that the Adolf Struempell Prize 2024 will be awarded to Mrs. Lotte van the Venis

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Adolf-Strümpell-Prize 2024

Best Paper Award Adolf-Strümpell-Prize 2024 for HSP-Therapy

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HSP Patient Journey developed by Adam Lawrence and Lori Renna Linton

Patient Journeys  are info-graphical overviews that visualize patients’ needs in the care of their rare disease. Because Patient Journeys are designed…

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EVENTS & MEETINGS

08.08. 2024 Nuotiamo per la ricerca

Today Giuseppe Busacca was swimming from the island of Vulcano to Sicily (21 km) for gaining awarness for HSP and for collecting donations for the euroSPG4 project. You find more info on facebook. Please leave a donation here. Thank you so much Giuseppe.

 


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„Vital to quality of life is the ability to work together, learn from each other, and help each other grow”

Support our current
euroSPG4 project

We would be pleased and grateful for a donation for our ongoing euroSPG4 project. 

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