Get Involved
There is an HSP forum, RareConnect, maintained by EURORDIS. You can request for the translation of the messages to your language.



Adam Lawrence's Blog called : A Journey to HSP/FSP:https://hspjourney.blogspot.com
European Reference Network for Rare NeurologicalDiseases (ERN-RND) http://www.ern-rnd.eu/
Eurordis: The voice of Rare Disease Patients in Europe https://www.eurordis.org/de