About EuroHSP

EURO HSP is a Federation of national groups related with a Rare Disease called Hereditary Spastic Paraplegia or Strümpell-Lorrain disease. The federation was made up during the project Rare!Together from EURORDIS

The following countries and associations are members of EURO-HSP


EURO HSP Statutes were presented at the Prefecture de Police de Paris and are registered under the reference W751205920. Creation was published at the Journal Officiel de la République Française of 31st July 2010 (number 31 of year 142) in page 3717 with number 1242.

The actual Board of Director is formed by:

  • President, Marina Zapparoli, Italy
  • Vice-president, Hermien Remmelink, Netherlands
  • Treasurer, Martin Ott, Switzerland
  • Secretary, Giorgia Tartaglia, Italy
  • Scientific Advisor, Gerald Fischer, Austria