Get Social

There is an HSP forum, RareConnect, maintained by EURORDIS. You can request for the translation of the messages to your language.

Rare Connect Discussion Groups (English)

The US SP Foundation maintain an HSP List Server that you can join at
http://sp-foundation.org/get-assistance/subscribe/

The Spanish AEPEF has two distribution lists in Spanish:

In Facebook you can find also:


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Events